I understand the app is still new, so I’m hoping things will change. I keep track of my swells so I can show others/have proof. It is important that I am able to accurately and quickly show them. The app allows me to track/take pics, but when it comes to reviewing my swells it only gives me dates, and I have to individually hit each episode to views pics. It would be nice if it could just be like a photo album. Just swipe to see the next swell. Also hoping for a way to share this info with doctors, through email.
I wish there was a comment area sometimes there are extra details that are important and the app is to pigeonholed. The simple is good but need an additional comment space. Letters are a little hard to read- darker font maybe.
Pharming Healthcare, Inc. is excited to offer the HAE & Me app to all patients who are living with hereditary angioedema (HAE). In this app you will find tools and resources to help you track and manage your disease and to help you share more information with your doctor. This free app provides - educational resources and motivational support - information you can share with your local emergency staff - an interactive journal and analysis tool that you can share with your doctor - access to a library of videos, including real patient stories and tips We value patient privacy; any information you store in the app is secured in a HIPAA-compliant database. We never sell your information to third parties or see personally-identifiable information. See the terms and services agreement for the full picture. In addition to the above resources, the app contains educational material regarding our acute HAE treatment. (c) 2021 Pharming Healthcare, Inc. 10 Independence Boulevard Suite 401 Warren NJ, 07059 www.pharming.com HAE-US-2021-0005
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